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Discovering
that your child has autism can be an overwhelming experience.
For some, the diagnosis may come as a complete surprise; others
may have suspected autism and tried for months or years to get
an accurate diagnosis. In either case, you probably have many
questions about how to proceed. A generation ago, many people
with autism were placed in institutions. Professionals were less
educated about autism than they are today and specific services
and supports were largely non-existent. Today the picture is much
more clear. With appropriate services, training, and information,
children with autism will grow and can learn, even if at a different
developmental rate than others.
While
there is no cure for autism, there are treatment and education
approaches that may reduce some of the challenges associated with
the disability. Intervention may help to lessen disruptive behaviors,
and education can teach self-help skills that allow for greater
independence. But just as there is no one symptom or behavior
that identifies autistic children, there is no single treatment.
Children can learn to function within the confines of their disability,
but treatment must be tailored to the child's individual behaviors
and needs.
Remember,
the purpose of this section is to provide a general overview of
available approaches, not specific treatment recommendations.
Keep in mind that the word "treatment" is used in a
very limited sense. While typically used for children under 3,
the approaches described herein may be included in an educational
program for older children as well.
It
is important to match your child's needs and potential with treatments
or strategies that are likely to be effective in moving him/her
closer to normal functioning. We do not want to give the impression
that you will select one item from a list of available treatments.
You should move forward in your search for appropriate treatment
knowing that you do not have to exclude other options, and that
all treatment approaches are not equal. The basis for choosing
any treatment plan should come from a thorough evaluation of the
strengths and weaknesses observed in the child.
Learn
more about:
- Understanding
your options
- Programs
for children under 3
- Programs
for school-aged children
- Evaluating
Approaches
Treatment approaches are evolving as more is learned about autism.
There are many therapeutic programs, both conventional and complementary,
that focus on replacing dysfunctional behaviors and developing
specific skills.
As
a parent, it's natural to want to do something immediately. However,
it is important not to rush in with changes. Your child may have
already learned to cope with his or her current environment and
changes could be stressful. You should investigate various treatment
approaches and gather information concerning various options before
proceeding with your child's treatment.
You
will encounter numerous accounts from parents about successes
and failures with many of the treatment approaches mentioned.
You will also discover that professionals differ in their theories
of what they feel is the most successful treatment for autism.
It can be frustrating! But you will learn to sift through them
and make rational, educated decisions on what is appropriate for
your child. You live with your child every day and you know his/her
needs. And in time, you will come to know his/her autism. Trust
your instincts as you explore various options.
Again,
please keep in mind that the descriptions of treatment approaches
provided here are for informational purposes only. They are meant
to give you an overview of an approach. The Autism Society of
America does not endorse any specific treatment or therapy.
During
your research, you will hear about many different treatments approaches,
such as auditory training, discrete trial training, vitamin therapy,
anti-yeast therapy, facilitated communication, music therapy,
occupational therapy, physical therapy, and sensory integration.
These approaches can generally be broken down into three categories:
- Learning
Approaches
- Biomedical
& Dietary Approaches
- Complementary
Approaches
Some of these treatment approaches have research studies that
support their efficacy; others may not. Some parents will only
want to try treatment methods that have undergone research and
testing and are generally accepted by the professional community.
But keep in mind that scientific studies are often difficult
to do since each individual with autism is different.
For
others, formal testing might not be a pre-requisite for them to
try a treatment with their child. Even for those with "scientific"
proof, we recommend that the family or caregiver investigate all
options available to determine the appropriateness to their child.
Experts
agree though, that early intervention is important in addressing
the symptoms associated with autism. The earlier treatment is
started, the better the chance the child will reach normal functioning
levels. Many of the approaches described can be used on children
as young as age 2 or 3. They may also continue to be used in conjunction
with special education programs or traditional elementary school
for children who are mainstreamed.
If your child is younger than 3 years old, he or she is eligible
for "early intervention" assistance. This federally-funded
program is available in every state, but may be provided by different
agencies. Contact one of the ASA chapters in your area for more
specific information or obtain a state resource sheet from the
National Information Center for Children and Youth with Disabilities
from your state referral.
This
early education assistance may be available to you in two forms:
home-based or school-based. Home-based programs generally assign
members of an early intervention team to come to your home to
train you and educate your child. School-based programs may be
in a public school or a private organization. Both of these programs
should be staffed by teachers and other professionals who have
experience working with children with disabilities specifically
autism. Related services should also be offered, such as speech,
physical or occupational therapy, depending on the needs of each
child. The program may be only for children with disabilities
or it may also include non-challenged peers.
From the age of 3 through the age of 21, your child is guaranteed
a free appropriate public education supplied by your local education
agency. The Individuals with Disabilities Education Act (IDEA)
is a federal mandate that guarantees this education. Whatever
the level of impairment, the educational program for an individual
with autism should be based on the unique needs of the student,
and thoroughly documented in the IEP (Individualized Education
Program). If this is the first attempt by the parents and the
school system to develop the appropriate curriculum, conducting
a comprehensive needs assessment is a good place to start. Consult
with professionals well versed in autism disorders about the best
possible educational methods that will be effective in assisting
the student to learn and benefit from his/her school program.
Educational programming for students with autism often addresses
a wide range of skill development, including: academics, language,
social skills, self-help skills, behavioral issues, and leisure
skills.
As
a parent, you can and should be an active and equal participant
in deciding on an appropriate educational plan for your child.
You know your child best and can provide valuable information
to teachers and other professionals who will be educating your
child. Collaboration between parents and professionals is essential
open communication can lead to better evaluation of a student's
progress.
To
learn about other services specific to your area, you may wish
to contact resources in your community, such as your local ASA
chapter, a local university affiliated program for developmental
disabilities, the local chapter of the Association for Retarded
Citizens, Easter Seals, or the local developmental disabilities
council. If you decide to contact any of these agencies, please
keep in mind that it may take days or weeks to find the information
you need.
Because no two children with autism have the exact same symptoms
and behavioral patterns, a treatment approach that works for one
child may not be successful with another. This makes evaluating
different approaches difficult. There is little comparative research
between treatment approaches. Primarily this is because there
are too many variables that have to be controlled. So, it's no
wonder that as a parent you might be confused about what to do.
In
her article "Behavioral and Educational Treatment for Autistic
Spectrum Disorders" (Advocate, Volume 33, No. 6), Bryna Siegel,
Ph.D., suggests thinking about "each symptom as an autism
specific learning disability
" that tells "something
about a barrier to understanding." Using this model, you
can then evaluate what your child can and cannot do well. "
take
stock of which autistic learning disabilities are present,"
and "then select treatments that address that particular
child's unique autism learning disability profile."
Understanding
these learning differences is the first step in assessing whether
a specific treatment approach may be helpful to your child. Understanding
a child's strengths is equally important. For example, some children
are good visual learners, while another more advanced child may
need written, rather than oral, cues.
Finding
Treatment Programs in Your Area
Once
you become familiar with the treatments that are available and
appropriate for individuals with autism, you may be concerned
about where they can receive these services. Treatments may be
obtained through either the medical or educational community,
depending on the nature of the treatment. There are also a variety
of resources you can use to find qualified professionals or service
providers in your area. There are several state agencies established
to provide this type of information and support, including Protection
and Advocacy; Developmental Disabilities Planning Councils; Vocational
Rehabilitation Centers; Parent Training Centers; and Educational
Resources. You should also try your local ASA chapter for tips
on programs and professionals in your area.
Disclaimer:ASF
DOES NOT ENDORSE ANY TREATMENT, MEDICATIONS, OR THERAPIES FOR
AUTISM. THE WRITTEN MATERIALS CONTAINED ON THIS SITE ARE FOR INFORMATIONAL
PURPOSES ONLY.
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